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The autism spectrum is broad, varying features that are sometimes difficult to recognize on the surface. Some adults may have lived their lives without a full awareness that some of the barriers and struggles they have faced are a result of undiagnosed autism. Reports include those who have been stunned by the direct question, “When were you diagnosed with autism?” Other reports specify experiencing difficulty understanding social interactions, difficulty with tolerating textures, changes in routines, and being genuinely dumbfounded by read more
Interoception refers to the sense and perception of internal bodily sensations, an inner compass that helps us recognize internal sensory experiences. It is the ability to detect and interpret signals from within our own bodies, allowing us to be aware of various physiological processes such as heart rate, breathing, temperature, hunger, thirst, bathroom urges, and the feeling of pain or discomfort. Interpreting these signals allows us to gain awareness of physical and emotional states, aiding in self-regulation and decision-making. Through read more
Looking for a way to positively impact an autistic teen or adult in your orbit? Consider hiring them to cut your grass. I’ve done this twice and here is what I have learned so far: Grass cutting is a social skill. Grass cutting requires knowing what the boss wants the lawn to look like. My first employee was a man with intense support needs who is non-speaking and always thinking! He loved cutting with a rotary mower – the old read more
I walk into school on my first day of kindergarten and an adult points me in the direction of my classroom. Whew. Made it! I’m in the “Trauma, Depression, Anxiety, OCD, Autism classroom”. It’s where people like me go to get the support they need. Next door is the “Hearing Impaired Wheelchair User classroom”. Okay, so yes, I’m being over the top. Realistically, when I was in kindergarten 30 years ago, we didn’t talk about mental health and anyone with read more
Volunteers! Where would we be without you? Your contributions of time, energy, and expertise have helped us in so many ways. From organizing events, providing support to families, raising awareness, and fundraising, you have been there for us every step of the way. Your hard work and dedication have enabled us to reach out to more people and provide them with the resources and support they need. Your generosity and kindness have touched the hearts of many families in our read more
On April 2, 2023, Liberty Magic hosted Mr. Messado’s School of Magic’s first sensory-friendly show. This performance was part of a collaboration between Autism Connection of PA, the Pittsburgh Cultural Trust, Liberty Magic, and Mr. Messado himself. His show required minimal changes because he is a natural working with all children. During the hour long performance, audience members took active roles in the magic tricks, and Mr. Messado seamlessly flowed with participants’ excited responses, and reveled in their joy. Learn read more
Thanks to our great support network we were able to do a quick turnaround and prevent the likely loss of a career for someone who recently reached out to us for help. We were so grateful for all the forces that combined and allowed us to be our mission of “a lifeline of support.” M. had been “in love” with a young person they met over ten years ago. While they never had an in-person dating relationship, a heart read more
I was diagnosed with ADHD at 43. I always knew that I was different from my peers. Looking back, that difference created barriers and annoyed people at times. My non-stop chatter and impulsivity would lead to fights, self medication, and forced isolation during adolescence and early adulthood. I reflect now and I realize that physical activity helped regulate me; you may say it saved me. The structure and expectation of sports was key in my day-to-day success and when it read more
One day a week I take myself to the office, the rest of the week I work remotely. The fluorescent lights in the office are not kind, and it takes me an hour to de-escalate myself once I get home. Sensory overload is real and it is hard. I wasn’t always aware of my sensory needs, and I still struggle with coping, but my son taught me how to identify obstacles in the environment. They were always there, and sensory read more
A sensory-friendly room can be a crucial step toward providing comfort and relaxation for people with sensory sensitivities. However, the idea of taking on this task may seem overwhelming because of the high costs associated with it. Recently, Autism Connection of Pennsylvania visited our friends at Three Rivers Community Care, where CEO, Allison Broaddrick, demonstrated that many of the elements found in our region’s large, sensory-friendly spaces can be replicated on a smaller, more affordable scale. Examining larger projects in read more
On Saturday, April 29, 2023, our friends at A Magical Fundraiser are hosting 13th Hour Entertainment and Autism Connection of PA for a casual night out at the Tonidale Pub in Robinson Township. A Magical Connection is a fun, high-sensory event that benefits the region’s autism community. This event features: Dinner Mindwarp Show featuring Mentalist/Magician Steve Haberman with the vocal talents of Tracy Lynn Disc Jockey and Dancing by Nite Life DJz Basket Raffle and 50/50 drawing Autism Connection of Pennsylvania spoke read more
International Epilepsy Day is observed annually on the second Monday of February to raise awareness and to promote understanding and acceptance. The theme for International Epilepsy Day 2023 is “Epilepsy in the Workplace,” which highlights the challenges people with epilepsy face at work, and the importance of creating inclusive and supportive environments. The earliest mentions of epilepsy can be traced back to Babylonian tablets from around 2000 BCE, where it was referred to as the “sacred disease.”* In ancient Greece, read more
We learn a lot from individual histories and situations thanks to people trusting us with their personal stories and advocacy needs. Over the years, some situations have revealed that an additional medical or psychological diagnosis, or both (often a psych diagnosis is rooted in medical issues) may be the real culprits causing someone’s suffering. Autism is not the only difference a person can have, and we need to look closely at ourselves, and the people we care about. We also need to help read more
Sensory-Friendly performances have become a relatively new tradition for many families in the Pittsburgh area. The venues offer a “relaxed” atmosphere that is calm and welcoming. The accessible performances emerged in 2013, and have continued to create lifelong memories for people with autism or sensory processing disorders ever since, and the Pittsburgh CLO has adopted the tradition with its sensory-friendly A Musical Christmas Carol. Autism Connection spoke with Vanessa Braun from the Pittsburgh Cultural Trust and Lindsey Kaine from the read more
Autism Connection of Pennsylvania is thrilled to announce sensory-friendly areas in development at the Family Division of the Allegheny County Courthouse. We explored the facility with The Honorable Jennifer McCrady, the judge who initiated the project, who also took time to answer our questions about the importance of sensory-sensitive spaces. Autism Connection: What prompted you to create the sensory-friendly areas? Judge McCrady: The Family Division is a chaotic environment and can be very overwhelming for members of the community to read more
We are powered by an amazing board of trustees who actively engage in the work we need to in order to be a lifeline for families and adults, which is our mission. One of our unsung heroes is the Hon. William F. Ward (Bill) who serves on the Pennsylvania Commission on Crime and Delinquency (PCCD). As PCCD’s representative, Bill was key in creating funding opportunities in this Behavioral Health Commission Special Report. Follow the link below to read the full read more
We met up with some friends from the Gingerbread Man Running Company, who so generously donate proceeds from their annual half marathon to support you, the autism community in PA. Distance events – the rolling, swimming, bike, or running kinds – and autism may have more in common than you might imagine. They require practice, repetition, a slow building of endurance and technique to accomplish things over time. Sometimes we fall, get a sprain, strain, become overheated or freezing cold. We can read more
This is really important is usually that last passing thought I remember about the very important thing I was holding before my memory goes stark white. The phenomenon of blanking out after placing an important item (amusement park tickets in the upcoming scenario) isn’t uncommon. I mean, they even make memes about it. So when Autism Connection received an email from a parent in the aftermath of absentmindedness, we completely understood. Parent: “We were an hour into our drive to read more
By Sally Dean, M.S., BCBA, LBS Many children experience anxiety when it is time to go back to school. For kids with an autism spectrum disorder this can be especially true. Families can make this transition easier by doing a few simple things to decrease the worries and fears associated with the return to school. Parents and caregivers can reduce a child’s “back to school” anxiety by using the following techniques: Mark on the family calendar when the first day of school read more
Recently we were reminded of how small the world can be, in a good way. A lovely family decided to choose us as an honorarium beneficiary at the passing of their very successful, graceful, and beloved father. We gratefully received contributions from friends and family for several weeks. More recently, one friend of the family sent a check to the man’s son, who then mailed it to us. The family noticed an astounding coincidence – our business address is the read more
One of the most comforting experiences is the sound of a familiar voice, especially one you haven’t heard in a long time. There are those who look for help, and in the process, help others. Nichole Givner leads the Grandmothers with Love Autism Support Group in Pittsburgh, and I met her five years ago when she was seeking help, not only for her family, but for grandparents experiencing the same struggles. We initially met in person at Eat-n-Park in the read more
My daughter, 17 years old and autistic, was crying inconsolably last night. It’s one of the most difficult things for a parent to experience, especially when the reason for the upset isn’t readily apparent. “What happened?” I asked. Tear flooded eyes locked just past my gaze. “I’m afraid to drive.” And I knew what she meant. “Me too,” I said. “But I know that there’s people who can help.” The Helpers Times of despair such as we as a nation read more
Note: I am a slow processor, especially around trauma, in large part because I have PTSD from witnessing one murder, seeing news coverage of two friends’ murders, and being assaulted with the threat of being killed — all random stranger crimes. Lots of people have PTSD for lots of reasons – it’s not just for veterans! I didn’t know that for over 30 years and I credit my friend Kris Veenis and his amazing documentary for waking me up to my read more
Autism Connection’s team joined forces with a slew of dedicated volunteers at the 2022 Pittsburgh Marathon. It was 6:00 in the morning, and we were surrounded by water; gallons and gallons of water waiting to fill paper cups. There were heavy clouds weighted with water above us. Under Fluid Captain, Norm’s, direction, volunteers quickly assembled paper cups, filled them, then placed cardboard slats on them so we could layer the cups in stacks three layers high. We were cold. Large read more
I love running, but there are still many days I wonder why I punish myself by running non-stop for hours at a time. When I get discouraged or lose my motivation, I remember my daughters and how I want to be an example of not only a healthy lifestyle for them, but I want them to challenge themselves. That looks different for each of them as Lydia is a neurotypical, outgoing 10-year-old who has a heart the size of a read more
Our dear friend and brilliant board member, Curtis Upsher Jr., died suddenly a little over one month ago. A person’s value and their connection to us is in part measured in how many times we reach for the phone or think of sending an email to check in with them, hear their thoughts, and listen to their latest story about their family or a project. By that measure, we hold Curtis in very high regard, he being a key figure read more
This post-Easter Monday morning started with grey skies and a black cup of coffee, but things became colorful in an instant. What I thought would be a quiet beginning to my fourth week as Director of Operations for Autism Connection turned out to be delightfully busy, and quite literally, energetic. I was settled at my desk, setting priorities for the upcoming week, but the morning had other plans. We had an unexpected visit from a local father and son who read more
Microsoft has announced plans to hire people with autism. Working with specialist employment agency Specialisterne, which trains and finds positions for people diagnosed on the autism spectrum, the pilot program begins in May with 10 full-time positions in the company’s Redmond, Wash., corporate headquarters. READ MORE
In commemoration of World Autism Awareness Day, Lu Randall, Executive Director at Autism Connection of PA, and April Artz, Coordinator for the EmployAble program at the Squirrel Hill Career Development Center, are working to place adults with mental health issues in STEM jobs. The EmployAble program, which provides supportive services along with their job placements, acquired the funds to include services for adults on the autism spectrum in 2014. READ MORE
Dear Mom and Dad, I know it’s breaking your heart to see me as I am now. Most of the kids we know are starting to talk while I’m just making sounds. I’m lashing out because I’m struggling. I can’t communicate my needs, and things are just not going the way I wish they would. I scream and fight with you every time you try and bathe me because I can’t stand the feeling of water. I cringe anytime I read more
A new website will give teachers information and guidance to understand, help and deal with students on the autism spectrum. A new website is providing a free one-stop shop for teachers and parents of children with autism spectrum disorder (ASD), offering guidance about how best to manage the learning disability in schools. The website, called Amaze Online Classroom, is the product of a joint initiative by Amaze, the peak body for ASD in Victoria, and the Department of Education and Early Childhood read more
She’s not finished. “Now, I’m seeing the bolts on the ground that they cut off the mailbox I have now. They moved the mailbox across the street, but the post office doesn’t have keys for them. I have to pick up my mail at the post office (in Fort Collins, Colorado), and now I see myself standing in line at the post office and the guy is going, ‘We don’t have the keys yet.’ It’s really stupid.” Grandin has written read more
Another post by popular demand! If you are visiting here for the first time, make sure you check out my 500 SDIs post. That post took forever to do, but it is gets used so I’m happy that it was worth the effort. But as a result of that post, I have heard many times from readers and friends, “great! Now please do one for an IEP goal bank.” That to me is just such an overwhelming task, I can barely read more