autism – Autism Connection of Pennsylvania

Indoor Activities for Complex Needs

At Autism Connection of Pennsylvania, we believe meaningful activities don’t have to be loud, busy, or demanding. For many autistic people, especially those with higher support needs, the most powerful experiences are the ones that support regulation, safety, and choice.

Whether activities happen in a community space, at home, or online, what matters most is that people are free to engage in ways that feel right to them. Here are some activity ideas and guiding principles that help make that possible.

Sensory Activities: Supporting Calm and Regulation

Sensory activities can help the nervous system settle. These spaces and tools are designed to be soothing, predictable, and flexible.

Think:

Quiet sensory rooms with soft or dim lighting
Bubble tubes, fiber optic lights, or projected visuals
Weighted blankets or lap pads for grounding
Soft textures to explore, like fabric, gel pads, or water beads
Preferred music or calming background sounds

There’s no “right” way to use sensory supports. Some people stay for a long time. Others take a quick break and move on, and that’s okay.

Creative Activities: Exploration Over Outcome

Creative activities aren’t about finishing a project or making something “look right.” They’re about exploring materials and enjoying the process.

Options might include:

Painting with hands, sponges, or rollers
Squeezing and shaping clay, dough, or putty
Light tables or glow-based art activities
Music play with drums, shakers, or chimes

Participation can look like watching, touching briefly, or repeating the same motion again and again. All of it counts.

Movement Activities: Helping the Body Feel Safe

Movement can be regulating, especially when it’s gentle and predictable.

Supportive movement activities include:

Slow stretching or simple yoga poses
Rocking chairs or supported indoor swings
Walking paths with clear visual cues
Soft obstacle courses made with mats and pillows

These activities aren’t about exercise or performance; they’re about comfort and body awareness.

Engagement Activities: Supporting Focus and Interest

Some activities help with attention and connection without requiring social interaction.

These might involve:

Sorting or matching favorite items
Cause-and-effect toys or switches
Simple routines done the same way each time
Choice boards using pictures or real objects

Familiarity and repetition can be reassuring, building trust and confidence.

Social Groups: Shared Space, Not Forced Conversation

Social groups don’t need talking to be meaningful. Often, simply being together in the same space is enough.

Small Group Options

Sensory play groups
Music and rhythm groups
Quiet groups built around shared interests
AAC-supported communication groups

Family-Supported Groups

Parent–child sensory groups
Sibling-friendly indoor play times
Caregiver-supported adult groups

These groups work best when expectations are low and support is built in.

What Matters Most

Across all activities and groups, a few principles make the biggest difference:

No pressure to interact
Parallel play is welcome
People can come and go as needed
All forms of communication are respected

Belonging should never be tied to behavior, speech, or participation.

Indoor Events: Predictable and Calm

Indoor events are often more accessible when they follow a clear routine and keep sensory demands low.

Ongoing Events

Sensory-friendly movie days
Open sensory gym or playroom hours
Quiet craft or activity times
Weekly clubs with the same schedule each time

Special Events

Sensory-friendly holiday gatherings
Autism-friendly expos with quiet spaces
Story times using objects, visuals, or AAC
Music or performance events designed for people with profound autism

In-Home and Virtual Options: Flexibility Matters

Not everyone can attend in person—and they shouldn’t have to miss out.

Accessible alternatives include:

Virtual sensory activities
Recorded calming routines
Online groups that use visuals or AAC
Flexible options families can use at home

Choice and access should extend beyond physical spaces.

What Makes Activities Truly Accessible

Accessibility isn’t about one feature. It’s about the whole experience. The most supportive activities include:

Visual schedules shared ahead of time
Clear beginnings and endings
Real choice, without pressure
Trained, understanding staff
Respect for non-speaking communication
No requirement to “participate” in order to belong

When we design activities this way, we create spaces where autistic people can feel safe, regulated, and genuinely included, exactly as they are.

At Autism Connection of PA, that’s the kind of connection we’re working toward every day.

Call to Action for Providers

Are you offering autism-friendly activities or support for autistic people with complex needs?
Make sure families can find you by listing your program at autismofpa.org.

Families are actively searching for safe, accessible indoor activities for people with profound autism. Providers can help by ensuring their programs are listed in Pennsylvania’s statewide autism resource directory.

Email tammi@autismofpa.org to share your services and reach families who need them.

By listing your autism-friendly activities, social groups, or events, you help families find options that respect sensory needs, communication differences, and safety without forcing participation.

Join us in expanding access across Pennsylvania.

12 Months of April

What if April didn’t have to end? That’s the question behind 12 Months of April, a project turning autism awareness into year-round action. From creating sensory kits to connecting families and first responders with life-saving programs like Yellow Dot and Project Lifesaver, this initiative started with one parent’s mission: make safety resources known, accessible, and ready when they matter most.

The parent behind the project, Kati Maas-Crawford, shares the story behind 12 Months of April.

When Good Intentions Aren’t Enough: Lessons from Autism, Safety, and Community Programs

In November 2024, I met with my municipality to discuss programs like the Yellow Dot Program and Project Lifesaver. I followed up with emails to help supply the building with pamphlets and information. In March 2025, I read a court document labeling these efforts “gratuitous,” which was upsetting. How could programs meant to help people with special needs be seen as unnecessary, especially by a family law firm?

A week later, Victor Perez was shot and killed by police in Idaho. I wondered if resources like a premise alert or special needs registry, or de-escalation techniques I’ve used in classrooms, could have made a difference. Shortly after, RFK held a press conference on autism, sparking widespread debate that felt personal, since autism touches both my home and work life.

At the end of April 2025, a book was sent to our house “to help” our child. It wasn’t requested, didn’t focus on coping skills or sensory needs, and didn’t fully represent autistic experiences. We were initially told it came from our municipality or police department. When I raised concerns and suggested better options, I was later informed the book did not come from them, which left questions and frustrations unresolved.

Making April Last All Year

Any one of these things would create anxiety for a parent but everything quickly accumulating amplified my worries. I knew that passively observing all these problems was not an option for me. If there is a problem, you solve it. One clear problem was that there wasn’t enough awareness of these resources by families, care providers or first responders. We were deep in April, which is autism awareness month, but what happens once April is done?

You make April year-round!

I then made myself the goal of contacting all municipalities in Allegheny County within 12 months about programs that they could share with their first responder services as well as community members. Hence the name “12 Months of April.” I made a Facebook page about my goal to hold myself publicly accountable as well as promote the safety resources.

Yellow Dot, Project Lifesaver, and Premise Alerts are free through the County and State and can make such a difference for everyone who could be involved in an emergency.

The Yellow Dot program is a yellow circle sticker that goes on your back windshield to alert first responders that someone in the car has special needs whether they be medical, physical or cognitive. A yellow pamphlet in the glove box details these needs to help first responders provide even better assistance for someone who is deaf, non-verbal, diabetic, heart condition, anything.

Project Lifesaver is a national program that is currently sponsored in Allegheny County through the DA’s office. It is a bracelet that a person wears and can be tracked through radio frequency should a person wander and does not have the means to communicate or understand where they are. This benefits those with autism as well as those with dementia or Alzheimer’s. This can help greatly reduce search time for someone which is crucial in preventing injuries or death.

The Allegheny County Premise alert is also known as the Special Needs Registry. I personally share it as a premise alert as it can help in many ways. You register with the county and then if services are dispatched to your home, police get an alert that gives them information about special needs, if the house has firearms, senior resident is on oxygen, or anything that helps prepare them.

I personally feel that the ball has been dropped, or not even picked up when it comes to promoting these programs. Information about them seems to be a reactive measure after a tragedy has happened. I would much rather be proactive. Even if one person a day learns about these things, then they can share with someone else and information will continue to ripple out.

Sensory Kits

As things were progressing, I spoke with a social worker and we discussed the cost of sensory kits. Sensory kits can retail for $50-$150 which can be hard to work into budgets. I feel that that cost is high, especially considering how much of the kit contents were sitting in a toy box at my house. I felt that something was better than nothing and started making kits.

The kit may look like a Ziplock bag of “stuff” but everything in them has a purpose. Every item in the kits reminds me of our child or my students. I made and donated a few, posted it on our page and then started receiving requests! To keep up with requests, I started posting on Facebook and talking with friends about others cleaning out their toy boxes. As things continued, it was suggested that I make an Amazon Wishlist, which people have been so generous with!

My husband and our daughter help make and deliver the kits. Our daughter is so caring about others and we are so proud of her every day! She understands what everything in the kit can help with and has explained the sensory kits in front of Fire Departments, Fraternal Order of the Police meetings and each grade at her school for their Safety Day. As my goal progressed, places were requesting that we come do a presentation about the sensory kits as well as other resources and ideas.

Growing the Mission: Expanding Sensory Kit Support and Community Partnerships

As this project has grown, I feel the need to keep it going and expand into neighboring counties as well as Erie county where I grew up. To support that mission I jumped through the hoops to get non-profit status to keep things accountable and ready to grow. I want to keep reaching out to different organizations about spreading information about the safety programs as well as coming together to collect items for kits, make them and then get them to first responders.

The list of people I want to thank is constantly growing and it’s almost unbelievable how supportive people have been, especially those in the community where we live. There is a man in Cranberry, Harry Rattay, who has been incredibly supportive with orders and funds and I can tell how much he loves his nephew.

We have started working with schools, Girl Scout and Cub Scout troops, American Heritage Girls, and more to collect items, create kits and donate them to first responders while children can learn more about what the first responders do. The ACLD Tilotson School in Baldwin has made 65 kits! Girl Scout Troop 16144 in Shaler has 30 kits made and they will be directly donating them to O’Hara PD, Lower Valley EMS as well as Parkview EMS and VFD.

I always say that in a perfect world, these kits wouldn’t be needed. But we all know that anything can happen and I am hoping that these kits will help First Responders assist children, those with special needs really anyone who could use some different support during a crisis. I have met so many wonderful and helpful people along the way and we find ways to help each other. Whether it is sharing posts, exchanging items, offering and receiving support, everyone has been awesome!

The 12 Months of April project has grown from creating sensory kits for local first responders to expanding into neighboring counties, partnering with schools, scout troops, and community members to collect, assemble, and distribute kits. With nonprofit status secured, the initiative continues to raise awareness, provide practical support, and build a network of caring people dedicated to helping children and individuals with special needs during emergencies. To learn more, visit 12 Months of April on Facebook.

Language Matters: Why Disability Slurs Hurt—and What We Can Do About It

Until we recognize that autistic people and people with disabilities are valuable, capable human beings, we will continue to lose words that were originally meant simply to describe a demographic. Over time, everyday language gets twisted, misused, and weaponized—turning descriptive terms into insults. When that happens, the people connected to those words become targets too.

This cycle harms more than vocabulary. It harms people.

When Words Become Weapons

Many disability-related terms began as neutral descriptions. But because our society has long underestimated, excluded, or stigmatized people with disabilities, those words often slid into the realm of slurs. We see this most clearly with the R-word—once a clinical descriptor, now a widely recognized insult.

The problem isn’t the word itself.
The problem is how our culture has treated the people behind it.

If a group is not respected, their label becomes a punchline.
If a group is devalued, their identity becomes shorthand for “lesser than.”

Autistic people and families tell us that the impact is anything but harmless.

The Real Impact on Autistic People and Families

A parent recently shared with us:

“The slur-hurling is making us (autistic people and their families) feel like we’re ‘lesser than’. We’re not seen as deserving of services or help by the general public if we’re seen as a punchline. Or worse, we’re invisible because everyone is trying to make autism look like it’s less severe than what it is. Language does matter.”

This is the lived experience behind the jokes, memes, and “I didn’t mean it that way” excuses.

Slurs do more than sting. They influence whether someone is seen as deserving of support, empathy, or even basic dignity. They shape how teachers respond, how communities include, how neighbors interact, and how policymakers prioritize services.

When people become jokes, they also become invisible.

Minimizing Autism Doesn’t Help Anyone

There’s a growing cultural tendency to soften or minimize the challenges many autistic people face. While positive stories and strengths-based perspectives are important, they cannot erase the need for support, services, and understanding—especially for those with high support needs.

When autism is treated like a quirky personality trait rather than a legitimate disability, families may encounter disbelief, judgment, or outright dismissal.

And when slurs are used casually, it reinforces the idea that autism, intellectual disability, or developmental differences are inherently negative. Or worse, something to mock.

Respect Starts With Language

Changing the way we speak is not about being “overly sensitive” or enforcing “political correctness.” It is about recognizing the full humanity of autistic people and people with disabilities.

Words can:

reinforce stigma
block access to support
shape public attitudes
affect policy decisions
influence how people treat one another

Respectful language creates safer and more inclusive spaces. It signals that people with disabilities are real, valued members of our communities, not punchlines, burdens, or stereotypes.

What We Can Do

Everyone plays a role in reducing harm and building a more inclusive culture. Here’s where we can start:

1. Retire disability slurs—including the R-word—completely.
Even “as a joke,” they reinforce harmful beliefs.

2. Speak up when you hear others use them.
A simple “That word hurts people. Could we choose something else?” can make a difference.

3. Learn from disabled voices.
Autistic people and their families are telling us what they need. Listening is the first step.

4. Use language that reflects dignity.
People-first or identity-first language is always better than a slur.

5. Model respect in everyday conversation.
Kids, coworkers, and community members learn from what we say.

A Community Built on Respect

Autistic people and families deserve to be seen, heard, and valued. When we change our language, we help change our culture—and we make space for understanding instead of mockery, connection instead of stigma.

Language does matter.
And so do the people behind it.

If you or your family need support, Autism Connection of Pennsylvania is here to help.

Child Health Association of Sewickley Grant: Spelling

We are glad to share that Autism Connection of Pennsylvania has been granted the opportunity to further our mission of being a lifeline and hub for families and adults in the autism community. With heartfelt gratitude, we announce that we have been awarded a grant of $10,000 by the Child Health Association of Sewickley.

We believe in leaving no member of our community behind. Our organization is disability-led, with a passionate team that includes three autistic board members, and 33% of our staff is autistic. We serve people and families from infancy through older adulthood, with a goal that
everyone receives the support, information, and advocacy they deserve.

This grant is a testament to our commitment to inclusivity and accessibility. With these funds, we will embark on a project aimed at supporting people who are nonspeaking or minimally verbal, hoping to help them communicate their needs and wants—often for the first time.

Here’s a glimpse of what this project entails.

Project Goals

Link families who have had success with spelling to access academic, social, and healthcare needs
Engage families in dialogue with newcomers for whom traditional speech and language services are not sufficient
Emphasize the concept of presuming understanding on the part of nonspeaking autistic young people and promote literacy from a young age
Educate caregivers about autism brain differences that affect spoken communication
Encourage families to explore new communication methods with support from experienced practitioners

Measurement of Success:

Number of new families introduced to spelling for accessing various needs
Number of families using spelling with some success
Engagement of professionals in training sessions
Distribution of spelling boards at no cost
Involvement of families, teachers, and therapists in implementing spelling

This project aligns with our core values of inclusivity, accessibility, and support. We are dedicated to making a tangible difference in the lives of nonspeaking autistic people and their families, ensuring that communication barriers do not hinder their access to healthcare, education, and social engagement. Together, we can break down barriers and create a more inclusive world for people with autism who need access to communication.

Thank you for being a part of our journey.

Understanding The Connection Between Autism Spectrum Disorder and Cerebral Palsy

April is a time when we come together to recognize the diverse experiences of people living with autism spectrum disorder (ASD) and their families, and we encourage the momentum to continue throughout the year. Autism is a complex neurodevelopmental condition that affects how a person communicates, interacts with others, and experiences the world around them. As we delve into the intricacies of autism, it’s essential to understand its relationship with other conditions, such as cerebral palsy.

The Intersection of Autism and Cerebral Palsy

Cerebral palsy (CP) is a group of neurological disorders that affect movement, posture, and muscle coordination. While CP primarily impacts motor function, it can also co-occur with other developmental conditions, including autism. Research suggests that approximately 6% to 15% of individuals with CP also have a diagnosis of autism, highlighting the overlapping nature of these conditions.

The co-occurrence of autism and cerebral palsy presents unique challenges for each person and their families. Understanding the relationship between these conditions is crucial for providing comprehensive care and support. While the exact mechanisms underlying their co-occurrence are not fully understood, a couple factors may contribute to their association:

Common Risk Factors – Both autism and cerebral palsy have shared risk factors, including genetic predisposition, prenatal complications, and environmental influences.

Neurological Differences – Research suggests that disruptions in brain development may contribute to the development of both conditions. Structural and functional abnormalities in the brain can manifest as diverse symptoms associated with autism and cerebral palsy.

Navigating Dual Diagnoses

Receiving dual diagnoses of autism and cerebral palsy can be overwhelming for individuals and their families. It’s essential to access comprehensive support services and resources to address the unique needs associated with each condition. Here are some steps to navigate this journey:

Seek Multidisciplinary Care — Collaborate with a team of healthcare professionals, including pediatricians, neurologists, developmental specialists, and therapists, to develop a personalized treatment plan tailored to your child’s needs.
Access Early Intervention Services — Early intervention is critical for optimizing outcomes for children with autism and cerebral palsy. Explore early intervention programs that offer therapeutic interventions, educational support, and family-centered services.
Connect with Support Networks — Joining support groups and connecting with other families facing similar challenges can provide invaluable emotional support, practical advice, and shared experiences. Organizations like Autism Connection of PA offer resources and community networks.

Autism Connection of Pennsylvania thanks Jennifer LaRocco, Editor & Coordinator at Cerebral Palsy Guidance, for sharing her expertise through this insightful guest blog post. Jennifer’s contribution sheds light on the intricate relationship between autism spectrum disorder and cerebral palsy. As we commemorate April’s focus on autism, let’s keep the momentum going throughout the year. Thank you, Jennifer, for your dedication to raising awareness and fostering understanding in our community.

Please visit Jennifer’s page on the Cerebral Palsy Guidance website to learn more.

The Peaches and Cream Autism

Years ago, my autistic daughter participated in what they called a special needs sporting event. I was quietly cheering her on, and another parent asked, “What is she doing here? Helping?” I shook my head and explained that she, too, was playing as a child with a disability.

“What’s wrong with her?”

“Nothing is wrong with her. She just has autism.”

The other parent’s eyes glazed over as she remarked, “Not the real autism. She has the ‘peaches and cream’ autism.”

I gave no response.

This brief, somewhat painful interaction has stuck with me for more than a decade. First, the image of peaches and cream as it relates to levels of perceived heightened ability makes no sense. Second, the inner workings of the mind and body are generally difficult to observe because they are not overt. So those with the perceived simple “peaches and cream” autism seem to have no place. They are too visibly able to fit in with those who have overt disabilities, and too invisibly disabled to seamlessly connect with nondisabled peers.

Where do we land?

Unpacking the Peaches

Over the years, I’ve ruminated on the peaches and cream autism statement, and I have repeated the nonsensical phrase many times. Sometimes in an effort to try to figure it out; sometimes in an effort to gauge other’s understanding. Results were mixed.

My younger, non-autistic daughter, much like me, was trying to unpack the concept.

And she did, in a way that finally made sense. She being a mere 15 years old, made the revelation extraordinary.

“Maybe you have the peach fuzz autism too, Mom.”

“Peach fuzz?” I laughed. “It’s the ‘peaches and cream’ autism. And you are probably right.”

“Oh! I thought you were saying peach fuzz because it’s light and soft and hard to see.”

Light and soft and hard to see

Peach Fuzz

The way my mind works, I pictured a peach with its soft, fuzzy outer skin covering the fruit’s flesh. This led to an exploration and possible conclusion to the peaches and cream conundrum. And it makes sense in relation to autism and hidden differences.

The peach’s fuzzy exterior has puzzled experts, with no definitive explanation for its presence. However, one prevailing theory suggests that this textured coating serves as an additional safeguard for the delicate peel, which is susceptible to premature rot.

Peach fuzz exists even though it is difficult to detect, and it exists for good reason.

When I shared my findings with my daughters, the younger one sighed. “Peach fuzz on the face, I meant.”

We’re still looking into it.

Introduction to Autism

Getting any new diagnosis comes with the need to understand it. Learn the basics about autism, and get some take-home tips, from people who understand and have worked in this field for 20+ years.

We will explain the details about autism and how brain differences help shape personality, likes, dislikes, fears, eating, sleeping, the senses, and communication. Please come and ask your questions, meet others with similar concerns and learn what to do at home and in the community!

This is a free workshop, but registration is required.

Register Here