Autism Connection of Pennsylvania – Autism Connection of Pennsylvania

Kate looking over her shoulder holding a vase of flowers and smiling

Pittsburgh Marathon Runner Profile: Kate Alsaihati

As Kate prepares to bid farewell to her twenties, she is embracing a new challenge that goes beyond personal achievement. The 2024 Dick’s Sporting Goods Pittsburgh Marathon run is a testament to her resilience, determination, and the belief that we can overcome any obstacle. Her motivation is deeply rooted in her desire to be a strong and healthy mom for her two children, demonstrating that we can conquer challenges and do hard things.

Get to know Kate through her interview here:

Tell us a little about Nanny Kate.

When I was 18, I moved in with my cousin who had just had a baby. I was going into my first year of cosmetology school, and in exchange for room and board, I nannied for her and created such a special bond with her son who was two months old when I moved in, and a little over a year old when I graduated. I was lovingly referred to as “Nanny Kate” during my time there. A few years later, he and his younger brother were both diagnosed with autism.

Ten years later, I am still Nanny Kate. They are both such wonderful boys and I couldn’t think of a better organization to run for than Autism Connection of PA.

You have a milestone birthday coming up! What makes this marathon extra special?

This August I will be turning 30! I’ve never been a runner but a group of my friends convinced me to give it a shot and I thought, what better way to say good bye to my twenties than a half marathon?

I have two kids at home and I want to show them that you can do hard things! My kids deserve a mom that is able to run around with them and be healthy enough to do so! That is my motivation for this whole thing.

Any tips for runners?

I’m not sure if I’m in any position to give running tips because I’m still a beginner myself, but if I could give other people wanting to run something like this, any tips it would be to just keep pushing and keep going. It’s gonna be really hard and you will want to quit but don’t…. Keep going and keep running!

As Kate laces up her running shoes and ventures into uncharted territory, Autism Connection of PA invites you to be a part of her journey. Your encouragement, donations, and shared belief in the power of community can make a profound impact.

Visit Kate’s Race Roster page to show your support!

two empty coffee cups on a red background

Bereft of Coffee

While waiting for the coffee to finish brewing in the office kitchenette, my eyes fixated on the stream of coffee entering the carafe and the tranquil sounds it made in anticipation of the final surge of steam as the brewing finished. This concentrated focus drowned out a number of elements that flooded the surroundings, flickering lights, multiple distant voices, phones ringing, and the general energy of movement within the maze of cubicles.

During the reverie, I saw a peripheral figure approaching to my left, and a soft, clear voice flowed into my ears, “Good morning! How are you?” and at that moment, I straightened and turned my entire torso toward the person asking the question, stopping like a machine that produced speech. I heard my own voice say, “I am bereft of coffee.” And all memory of the moments following would never gel in my mind because I could only fixate on my social ineptitude.

Bereft of coffee. Who says that? Did you even make eye contact?

Bereft

Bereft is not a word used often in everyday conversation. It’s a complex, haunting word that comes from bereave, a term of loss and mourning that communicates that something is lacking.

Yes. I looked up the use of the word “bereft” over time. It really took a dip in the 1940s and I’ll probably try to find out why.

In the morning kitchenette interaction, the thing that was lacking was coffee, and the choice of the word bereft in this specific case seems a bit dramatic. The word may also communicate on some level that I really want to interact on your terms, but I just don’t know how. It takes a great deal of concentration and sometimes the words just pour out and I wish I could collect them and rearrange them into something, well, “normal.”

The coworker who kindly asked the question was likely to think, “Well, that was an unusual response,” and the moment would vanish along with the multiple mundane things that occur in a nondescript workday. But for me, this common office interaction became a source of shame that lingered for months. This wave of embarrassment was probably unnecessary but it is something that people on the autism spectrum face when they are aware of basic communication differences that can sometimes lead to misunderstanding.

Full Cup

When we have people who truly understand communication differences, we find that they often see these types of interactions insightful, and sometimes endearing. While lamenting to a trusted coworker about my perceived social awkwardness, she said how lovely it was that I was able to express such a deep love for coffee, and in turn, a deep appreciation for words. Bereft is a beautiful word that can express longing for acceptance, and even longing for something comforting, like a cup of coffee.

no one is more cherished in this world than someone who lightens the burden of another. Thank you volunteers

Volunteer Appreciation Week 2023

Volunteers! Where would we be without you?

Your contributions of time, energy, and expertise have helped us in so many ways. From organizing events, providing support to families, raising awareness, and fundraising, you have been there for us every step of the way. Your hard work and dedication have enabled us to reach out to more people and provide them with the resources and support they need.

Photos of volunteers at events, fundraisers, and sensory friendly performances.

Your generosity and kindness have touched the hearts of many families in our community. Your willingness to lend a helping hand and be a source of comfort and support to those in need is truly remarkable. Your efforts have not gone unnoticed, and we are forever grateful for everything that you do.

Photo of Tracy Lynn singing and Steve Haberman with a crystal ball

A Magical Connection Fundraiser for Autism Connection of PA

On Saturday, April 29, 2023, our friends at A Magical Fundraiser are hosting 13th Hour Entertainment and Autism Connection of PA for a casual night out at the Tonidale Pub in Robinson Township. A Magical Connection is a fun, high-sensory event that benefits the region’s autism community.

This event features:

Dinner
Mindwarp Show featuring Mentalist/Magician Steve Haberman with the vocal talents of Tracy Lynn
Disc Jockey and Dancing by Nite Life DJz
Basket Raffle and 50/50 drawing

Autism Connection of Pennsylvania spoke with the talented Tracy Lynn and the amazing Steve Haberman.

Autism Connection (AC): You’re involved in many different endeavors. Can you share about 13 Hour Entertainment, A Magical Fundraiser, the Mindwarp show, and your partnership?

Tracy and Steve (TS): 13th Hour Entertainment Inc. is a company specializing in family and corporate entertainment. We have combined with Magic Wand Princess Parties, Nite Life DJz and other entertainers to provide A Magical Fundraiser to help organizations that have fundraising needs. We provide the entertainment for these functions along with advice on how to make fundraising events successful. From years of working at these events, we have learned a lot about how the organization can maximize their efforts and money generated. Over the years we have worked with schools, fraternal organizations, companies, and other charitable organizations. Our Mind Warp Show is one of the most popular entertainment options for this type of event. It combines magic, comedy, and music into one show that appeals to all audiences.

AC: How did you become involved with A Magical Connection Fundraiser for Autism Connection?

TS: We have a lot of friends and family who have children or relatives that are on the spectrum. We have been wanting to do a fundraiser for a few years now to benefit autism awareness, because we think it is important for families to know the support that is there for them and truly feel accepted. With the pandemic, our plans were put on hold. We have a very close friend who has autism that guided us to the Autism Connection of PA, and we couldn’t be happier to be working with this foundation.

Tracy Lynn and Steve Haberman

AC: Do you have any outstanding experiences with people on the autism spectrum as a performer/artist?

TS: Many entertainers that work with 13th Hour Entertainment have performed for people on the autism spectrum. Magician Steve Haberman in particular, performs at numerous schools throughout Pennsylvania, Ohio and West Virginia for school assemblies and there are normally kids at these events who have a range of disabilities, autism, and hidden differences. He has performed for children with special needs in smaller groups and birthday parties as well. Steve also provided magical entertainment for a convention at Pittsburgh’s David Lawrence Convention Center for an autism conference. During this conference, Steve performed multiple magic shows throughout the day for the kids while parents attended various meetings and lectures. It is our great pleasure to work with the Autism Connection of PA on a fundraiser for this very important cause.

Ticket and Sponsorship Information Here

If you have questions about this event, feel free to call Tracy Lynn at 13th Hour Entertainment, (412) 926-3472 or email her at [email protected].

Support for Autism Connection of PA directly impacts people of all ages facing many challenges related to autism. Contributions raised will fund: help for families seeking resources, development of inclusive, sensory friendly areas across Pennsylvania, first responder training, virtual and in-person workshops, school homeroom and assembly talks about hidden differences, educator and administrative training, justice system reform, and so much more.

Visit Wednesday Wake Up Call for weekly updates of our current work.

The official registration and financial information of Autism Connection of PA may be obtained form the PA Department of State by calling 1-800-732-0999. Registration does not imply endorsement

Autism Connection Board of Directors Meeting

Spelling to Communicate (S2C) Virtual Workshop

Carole Policastro, D.Ed., shares information about Spelling to Communicate in this free workshop.

Spelling to communicate virtual workshop image of a laptop with text Carole Poicastro D.Ed. shares information about S2C

Renaissance style painting of a cat putting something in a jewelry box. The cat is wearing a peach toga sitting sideways and peering into the golden box.

The Most Important Thing

This is really important is usually that last passing thought I remember about the very important thing I was holding before my memory goes stark white. The phenomenon of blanking out after placing an important item (amusement park tickets in the upcoming scenario) isn’t uncommon. I mean, they even make memes about it.

painting of a cat putting something in a jewelry box with text Me: "I'm just going to tuck this away so I don't lose it." Narrator: "she would never see it again."

Me: I’ll just tuck this away so I don’t lose it.
Narrator: She would never find it again.

So when Autism Connection received an email from a parent in the aftermath of absentmindedness, we completely understood.

Parent:

“We were an hour into our drive to Idlewild when I realized I left the tickets at home. Major mom fail. Any chance there are etickets on file?”

Autism Connection:

“Hi ____________,

They’re print only but show them the receipt in this email and let them know what happened. I can relate to this 100 percent because it’s something I’ve done countless times. I’ll give Idlewild a call in the meantime. Also, they can call me if you run into any issues trying to get in.

I’ll also try to find the numbers on your tickets, too.”

***

We called Idlewild and got a disappointing response at first—They need barcodes, not ticket numbers or receipts. The barcode is the ticket in. Very important. The Idlewild employee was patient in listening to me plead our case, and we tossed solutions at the problem, including having the family email the barcodes after they return home. We were left with “I’m not sure what we can do. I’ll talk to the front office, but we’re really busy.”

We left Autism Connection’s contact information in hopes for a quick call back. In the meantime, we reached out to the family rapidly approaching Idlewild.

Autism Connection:

“Idlewild said they need the barcodes, so they don’t think they can do anything on their end. I’m waiting for her to call me back. Sorry about the delay. She said the park is very busy right now. Hoping to hear back asap.

If you have them scanned on your phone, they can get the barcodes. If not, we’re hoping they make an exception today.”

***

We didn’t get a call back from Idlewild, but we did get an email.

Parent:

“Thank you!

So many different things to stress about…headphones, snacks, water…that it’s easy for things slip my mind. (Many things) added to my distractions…

…They did let us in, and the exit pass to help with the lines was also a lifesaver.

We had a great day and a successful family outing minus my mom fail.

Thank you for the discounted tickets and making a call. Certainly, give them a shout out for being so flexible and understanding.”

So colossal Thank You, Idlewild!

***

Happy ending, yes, but one aspect of the situation, a phrase, continues to gnaw on my thoughts.

“We had a great day and a successful family outing minus my mom fail.”

To the Parent from Autism Connection:

You didn’t fail. You had a human moment; a completely understandable human moment, and you had the presence of mind to reach out to people who truly want to help.

That is the most important thing.