Jack Butler wearing workout clothes and sunglasses smiling into the camera and making peace signs

We Got Your Back, Jack! 2023 Pittsburgh Marathon Runner Runs for a Reason

I was diagnosed with ADHD at 43.  I always knew that I was different from my peers. Looking back, that difference created barriers and annoyed people at times.  My non-stop chatter and impulsivity would lead to fights, self medication, and forced isolation during adolescence and early adulthood. I reflect now and I realize that physical activity helped regulate me; you may say it saved me. The structure and expectation of sports was key in my day-to-day success and when it was missing, the consequences were unpredictable.  

Having a daughter with the same observable traits led me to encouraging physical activity and we experienced the positive outcomes of those daily challenges. That is how we live our lives together.  As a family we participate in 5ks, competitive dance, competitive powerlifting, soccer, and terrain races. And now at age 50, I myself am training for my first Marathon! 

This journey has already led to some meaningful moments in my life. I am thrilled that I can fundraise for a vital cause, and neurodiversity is now an open part of my personal life as much as it has been part of my professional life. 

Jack smiling broadly wearing a blazer and sitting in a conference room at Achieva

Jack Butler exudes passion for his work.

I have chosen to raise funds for the Autism Connection of PA, part of Achieva family of organizations where I have worked for 28 years.  Autism Connection relies on fundraising to fulfill its mission to promote awareness and advocacy for and with autistic people. People who like me, may identify with being on the fringe of societal norms. Autism Connection is not focused on fixing people, but welcoming people to the table, supporting their goals, and valuing all perspectives.  

Jack proudly holds up a tshirt that says Inclusion Matter

Inclusion Matters!

By sponsoring me to run the Pittsburgh Marathon, you will help Autism Connection continue their good work and help all people lead lives of personal significance. What started as a therapeutic way for me to self-regulate has now turned into a way I can  help meet some of the support needs of others. Please join me in this effort – I could use  your encouragement every step of the way! 

We got your back, Jack! Visit Jack Butler’s 2023 DICK’S Sporting Goods Pittsburgh Marathon page.

Pittsburgh Marathon logo

Pittsburgh Marathon 2023 Run for a Reason

Autism Connection of Pennsylvania is excited join the celebration of sthe 15th year of the DICK’S Sporting Goods Pittsburgh Marathon in 2023! The Pittsburgh Marathon was held annually from 1985-2003, and following a five-year hiatus, the DICK’S Sporting Goods Pittsburgh Marathon was relaunched in 2009 and debuted with a sold-out field. Show your support for Autism Connection at the 15th running of this awesome event this May!

Autism Connection’s Race Roster

 

Highmark Walk for a Healthy Community Logo

Highmark Walk for a Healthy Community

Autism Connection of Pennsylvania will be a participating organization for the 2023 Highmark Walk. If you would like to sign up and support Autism Connection, check out the event information listed below. We hope to see you there!

When:
Saturday, May 13, 2023

Where:
Acrisure Stadium – 100 Art Rooney Ave, Pittsburgh, PA 15212
Plaza at Gate A

Important Times: 
7:45am – Check-in and registration
9:00am – 5K Walk
9:15am – 1 Mile Walk

Other Information: 

  • Raise or donate $30 and you will receive a T-shirt while supplies last
  • You will receive one raffle ticket for every $50 that you raise or donate
  • Refreshments and entertainment
  • All routes are accesible for wheelchairs, electric scooters, strollers, etc.

Register Here!

Questions? Contact:

Tammi Morton
Phone: 412-995-5000 ext. 605
tmorton@achieva.info

Achieva Logo
Carnegie Science Center Logo

Miniature Railroad & Village® Sensory Friendly Tours

Join expert Miniature Railroad educators on a special behind-the-scenes tour through one of the Carnegie Science Center’s most popular exhibits! All tours will occur outside of regular museum hours. Designed for visitors with sensory sensitivities and/or other disabilities, these tours are personalized and free of crowds and loud noises. Each tour date has a very limited number of spots available, to maintain a welcoming, low-stimuli environment.

Tickets for this opportunity are free, regardless of Membership status, but require advance reservations for all members of your party. This is an all-ages appropriate event. General admission to the museum is not included, but can be purchased separately for the Tours that occur before museum open. To register, please use the buttons below, call 412-237-3400 or email CustomerService@CarnegieScieneCenter.org

photo of a drawing of two children standing alongside a third child in a wheelchair. It's a child's sketch and it's lying on a table surrounded by colored pencils and markers.

Let the Children Lead Us and Teach Us

One day a week I take myself to the office, the rest of the week I work remotely. The fluorescent lights in the office are not kind, and it takes me an hour to de-escalate myself once I get home. Sensory overload is real and it is hard. I wasn’t always aware of my sensory needs, and I still struggle with coping, but my son taught me how to identify obstacles in the environment. They were always there, and sensory overload affected me, but I am a product of the 80’s and 90’s growing up, and we certainly didn’t talk about sensory needs. You just dealt with it, or didn’t, but regardless you did it quietly.

Fast forward to having a child who was diagnosed with autism.

As a parent of a child on the spectrum, I had a large learning curve and I needed to maneuver it quickly. One day he didn’t have autism, and the next he did. Now I know, autism was always a part of him, this is what I mean by learning curve. In the beginning, I was circumventing the curve by doing everything others told me I needed to do to “cure the autism”. The focus was on changing him, not on creating a space where he could thrive. If he wasn’t in therapy or working on targeted skills, we were wasting precious time to “fix” him. False. False. False. 

Let me stop here and replace cure with cope and also say that speech, occupational, physical therapy, and skill building can happen in all the places all time. Children need space to be children and their adults need space to just be supportive adults. And while we’re replacing words in our vocabulary, let’s replace compliance with cooperation. But we can talk more about compliance vs cooperation in a future blog. 

We have so much to learn from people, especially children. Once I began focusing on coping, rather than fixing, everything changed. When I learned to listen to what my son was communicating but wasn’t verbally saying, everything changed. My son changed my entire view moving forward and made me realize I needed to reflect inward. The space I was trying to create for him to thrive, I learned, I also wanted. I didn’t want to just “get through it” anymore.  

Actively listening to my son smashed my rose colored glasses and showed me the beautiful world of diversity and inclusion. I learned how to identify and advocate for what I needed to be comfortable. I learned that asking questions and genuinely wanting to get to know about people and what is important to and for them, helps us all grow and create safe spaces. I learned that as I’ve shared how I feel or what I’ve experienced, many others say “me too!”, which creates a welcoming environment to share what is in their hearts and in their minds. I learned to meet people where they are. Even though I’m much older than my son, it’s been a life changing experience to learn together that neither of us needed fixing.  

This is a reminder to let the children lead us and teach us.

E.R. Heffel

close up of textured wall at Presley's Place at the Pittsburgh International Airport

Creating an Affordable Sensory-Friendly Room

A sensory-friendly room can be a crucial step toward providing comfort and relaxation for people with sensory sensitivities. However, the idea of taking on this task may seem overwhelming because of the high costs associated with it. Recently, Autism Connection of Pennsylvania visited our friends at Three Rivers Community Care, where CEO, Allison Broaddrick, demonstrated that many of the elements found in our region’s large, sensory-friendly spaces can be replicated on a smaller, more affordable scale. Examining larger projects in the Pittsburgh area is a source of inspiration.

Examples of Sensory-Friendly Areas

Autism Connection of Pennsylvania has seen innovative examples of areas that help people with sensory sensitivities since the Pittsburgh Cultural Trust brought sensory-friendly performances to our region back in 2013. One of the most outstanding endeavors is the sensory-friendly area at the Pittsburgh International Airport, Presley’s Place. This project motivated The Honorable Jennifer McCrady to initiate sensory friendly areas in the Family Division of the Allegheny County Courthouse.

Affordable Sensory-Friendly Rooms

First, a quick congratulations to Allison Broaddrick, for making the list of 30 Under 30 in the Pittsburgh Business Times. Her ingenuity and knack for problem-solving are among her greatest assets, and her use of inexpensive materials in creating a calming area at Three Rivers Community Care is a great model. The process began with addressing the specific needs that her friends, clients and associates expressed. From there, the team began putting ideas into motion.

Quick Tips for Inexpensive Sensory-Friendly Spaces

Choose the right color scheme: Soft pastels or muted shades of blue, green or lavender can help to create a calming atmosphere.

Manage lighting: Lighting can play a significant role in sensory experiences. Use soft lighting to create a relaxing environment. Avoid bright or fluorescent and flashing lights. Consider using dimmer switches or lampshades to help control the level of light.

Provide comfortable seating: Choose a comfortable chair or couch with soft, supportive cushions.

Incorporate soft textures: Use soft blankets, pillows, and plush toys to create a sensory-friendly atmosphere that is still texturally interesting.

Use soundproofing materials: Soundproofing materials can help to reduce outside noise, creating a quiet environment. Use foam panels or curtains to absorb sound.

Implement what works for for the person as an individual: Taking the lead from those who will benefit from the space is a critical first step. Look for elements that resonate with personally; it can be a favorite toy, activity, or sound.

Begin With The End In Mind

We can’t stress enough how very important it is to begin by listening to people who experience overwhelming sensory processing experiences. In each successful endeavor, people with lived expertise took active roles in the planning and development, and each project adjusts to feedback from different perspectives. The partnership between the Pittsburgh International Airport and Hayes Design Group Architects is a prime example because this collaboration began by bringing people who have sensory processing differences, autism, post-traumatic stress, and anxiety to the planning and development table at its inception.

Autism Connection of Pennsylvania continues to collaborate with the community in creating environments that are inclusive and accessible. Current projects include Accessibility in the Arts and the Frick Environmental Center Sensory Classroom. Time and time again, we find that many ideas are remarkably simple and can be inexpensive to replicate if we listen carefully and respond by bringing ideas to life.