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Category: Psychological and Medical Evaluations

Control group brain scan compared to autism brain scan

National Institutes of Health Funding: University of Pittsburgh’s Center for Excellence in Autism Research

We have taught about the medical diagnosis of autism for almost 25 years. Before the National Institutes of Health (NIH) funded brain research, teaching felt like simply trying to convince people, without evidence, that behavior and communication were different because an autistic person’s brain and body made them that way.  People still walked away skeptical. Teachers still blamed parenting. Folks said it was vaccines. Giving talks felt weak and at times pointless when too many people had closed minds.

Pictures Speak 1,000 Words

The number of skeptics leaving our classes dramatically reduced once NIH-funded brain imaging and other studies showed the medical facts. Autistic brains are wired differently. Some parts – like the piece that controls facial muscles being really small in many – are very different than average. Teaching with images finally showed how and why autistic people needed to do the various things others found hard to understand. Science helped us stop much of the punishment, torment, and abuse heaped on children and adults who moved, talked, and behaved in ways others found confusing or unacceptable.

The NIH helps parents, other caregivers, and supporters learn to adapt their ways to better nurture and accept the people they love, care for, and support. It helps employers tap talents while giving reasonable accommodations to let people flourish while building corporate revenues. And research helps law enforcement make better decisions on a 911 call response, and judges to better understand when someone makes a disability-based error or simply is doing “autistic things”  lacking criminal intent, which triggered a stranger’s 911 call.

We cannot stand by and watch the erasure of science that’s been truly lifesaving. Dumbing down society by cancelling scientific fact finding is unacceptable. We cannot count the emails and phone calls traded with our very good research friends at the University of Pittsburgh’s Center for Excellence in Autism Research, or with other generous NIH scientists nationwide who help us translate things like highly technical functional MRI science to the literally thousands of people we have reached. It has mattered a great deal. Words cannot express how much.

The Importance of Autism Research 

The Autism Connection of Pennsylvania does not rely one bit on NIH funding to exist. However, our population’s survival relies on the gifts NIH science has provided in terms of our own understanding, and our ability to show others the right way to treat people. This has been critical in preventing or resolving the most dangerous situations: when people explore without fear (“wanderers,”) or are victims of neglect and abuse, or are accused of crimes and fall into the criminal legal system and prison. Homeless people, those without adequate food, people left alone in the world after their parents die, children bullied, adults fired due to basic misunderstandings, people with epilepsy or other common coexisting disorders, children and adults needed psychiatric care and medications – the things we commonly deal with every single day to the tune of about 260 help requests a month – all have been helped by our  understanding how people internally process information, or how they cannot and need external help.

Please do anything you can to save NIH funding. Destroying decades of successful work by extremely smart and incredibly kind research friends is criminal and a huge talent loss, not to mention a tremendous waste of dollars invested for all the right reasons, with critically valuable outcomes to date. The future is in our hands – and we must fight to preserve it for the autism community.

Gia sitting on a chair instructing a class

IGIA Movement for Health Visits Autism Connection of PA

IGIA Movement for Health is well known in Pittsburgh, Pennsylvania for its innovative approach that incorporates various somatic practices like yoga, meditation, Hanna Somatics®, and dance to tap into the power of internal movement, stimulate new neural pathways, and improve the mind’s regulation of posture and emotions.

For the autism community, sensory overload and difficulty with interoception can interfere with the ability to recognize and manage emotions, so Autism Connection of PA was ecstatic to be invited to host IGIA Movement for Health for three pilot movement workshops. Three Rivers Community Care is also hosting a class on August 12th.

Care practitioner and IGIA Co-founder, Gia Cacalano, leads the Master Classes, taking cues from attendees to form her approach. IGIA movement practices can be done both seated and standing, they’re accessible, and no two classes are exactly alike. Co-founder and CEO, Harris Farris quietly participated in the first pilot class along with a small group. One autistic participant shares her experience with the class, and encourages others to attend.

Experiencing IGIA for Movement Master Class

I honestly didn’t know exactly what to expect, which can be a great source of anxiety. It was hot outside, and even though it was only 10:15 in the morning, I was already feeling overwhelmed with sensory overload. At least I think that’s what it was. Sometimes it can be difficult to identify what is going on with me, both physically and emotionally. I also realized that I had lost track of time and was running late.

The room was open and large with soft lighting. The instructor, Gia, was welcoming, the number of people in the class was small, and I had a great sense that I could just be myself. Gia explained that there is no wrong way to do the movements, and described how each movement affects the body.

  • Relaxes the nervous system
  • Spatial awareness in the environment
  • Internal spatial awareness – how I moved and how those movements related to how I was feeling
  • Observational rather than judgmental – no worries about being right or wrong, just noticing
  • Feeling less self-conscious – less resistance to trying something new
  • Sense of calm

Video: Harris Ferris demonstrates some simple movements

I recognized some of the movements and I thought, “Hey! These stem from stims!” Self stimulatory behaviors (or self-regulating behaviors) often serve a purpose, and I was perfectly happy to do some hand flapping that transformed into more delicate movements. It turns out that flapping and jumping ignites the lymphatic system, and can improve the immune system. 

Visual stims were also weaved into the movements. We worked on eye tracking along with slow, intentional head movements that seemed to broaden my peripheral sight. I was able to take in the entire room visually rather than focusing on specific elements. 

“Rocking is a controlled fall,” the instructor said. This statement stuck with me because I usually fight the urge to rock back and forth to calm myself. The slow, intentional rocking movements were among my favorites, and it was especially helpful to know that we were working on balance along with body awareness. 

Time passed quickly in the movement class, and even though there was no rigid structure, the instructor came full circle and this helped me recognize that the session was coming to a close soon. We began and ended with foot movements, gradually rocking to a standing position. 

I felt grounded and calm after the session, and I continued to notice when my muscles (especially in the shoulders) were getting tight throughout the rest of the day. I can see how practices from the movement class could help me regulate emotions after sensory overload, or when I struggle with interoception (during times when I feel disconnected from what I’m feeling, whether an emotion or hunger, fatigue or thirst). 

This was the first of three sessions, and they are off to a great start.

Gia notes that “even simply being present in the room–just observing and breathing–changes the dynamic. Even if someone showed up and just focused on breathing, that would be a complete session.”

If you want to learn more about IGIA for Movement Master Class, please visit IGIA Movement for Health. 

To participate in upcoming classes August 10th and 12th register here.

Woman facing camera holding a mirror that reflects her eyes back into the camera

Is That All You Got?

We learn a lot from individual histories and situations thanks to people trusting us with their personal stories and advocacy needs. Over the years, some situations have revealed that an additional medical or psychological diagnosis, or both (often a psych diagnosis is rooted in medical issues) may be the real culprits causing someone’s suffering. Autism is not the only difference a person can have, and we need to look closely at ourselves, and the people we care about. We also need to help others see folks for the complex and interesting beings that they truly are.

Imagine someone diagnosed with Type I, or juvenile diabetes, at age 12, and for the rest of their life all issues were attributed to that. Headaches?  It’s the diabetes. Vision issues? It’s the diabetes. Fatigue and nausea? – you get the picture. And what if those symptoms were coming from treatable migraines but never prevented or resolved by regular migraine treatment? A person might – and many do – suffer for decades if they are only seen as having one issue as the cause of everything wrong, while something else is going on. They have more than “one thing” and need to be treated as such.

We support three unrelated people who each have experienced: job loss, eviction, academic punishment and expulsion, legal issues, getting lost during travel, and social problems. All three have an autism diagnosis, and all three had been in car accidents from four years to decades ago! Once we started to say, “This does not seem like your autism,” and started referring them to traumatic brain injury (TBI) evaluations and treatment programs, many of their emotional burdens fell away.

They felt the same feelings of being different and not being able to move forward that many undiagnosed autistic adults feel. The additional, correct diagnosis of traumatic brain injury has resulted in feelings of relief, being finally understood, and belonging to a new support community. Are they still autistic? Yes! Can they be helped by a couple of different specialists? Also, yes. Combined therapies are doing great things!

We are all many “things” at once. Lazy, hungry, and curious, a chef, Netflix watcher, and a bookworm, a housecleaner, gamer, and a guardian, even a cat AND a dog lover! We can also be autistic and hypoglycemic, nearsighted and have tinnitus, or have anxiety and joint issues. Each of us exists in combinations of gifts, needs, strengths, interests, and biological differences. So please consider another look at yourself or someone you care about.

If things are not getting better, or they are worsening, or something has been bothering you for a long time and you keep putting off a checkup — trust your instincts!  Get and go to a doctor’s appointment. Contact us to talk things over — we know cross-disability professional friends, and can sometimes help with specialist medical referrals. Hopefully we can get you to a new “right place” to meet your needs. Let’s take a clear look at ourselves in this new year, together and with the tailored support each one of us deserves.