Adult Autism Diagnosis – Autism Connection of Pennsylvania

Why Aliyah Rahman’s Testimony Matters

For many years, we have used a decision-making funnel – developed through our board’s strategic planning – to guide what we post, write about, and include in our publications. An article must provide hope or useful information. We do not publicize trauma, pity, or inspiration porn. We are here to serve people and live our mission as a lifeline of support, information and advocacy. Scaring people, manipulating them with pity, or exploiting people with disabilities are simply the wrong tactics for us.

As a result, our total database now includes more than 21,000 contacts, with roughly 6,500 people following us on social media and about 12,000 receiving our weekly e-blast. It is okay to grow by serving people, and that appears to be exactly what has happened.

This week’s testimony by Aliyah Rahman is an example of extreme bravery, empathy, and resolve, and needs to be heard. Aliyah is an autistic woman with a traumatic brain injury who was assaulted by federal agents in Minneapolis. Her six-minute speech is extraordinarily powerful. While she speaks about being terrorized and harmed, her primary concern is for the many people she witnessed inside an inhumane detention center who do not have her platform. Aliyah demonstrates incredible courage that provides hope while also shattering the harmful stereotype that autistic people lack empathy. That is vital information for us all.

This video includes firsthand testimony from Aliyah Rahman, an autistic woman with a traumatic brain injury, describing harm she experienced in detention. Her words are difficult, but they are shared to provide truth, information, and hope, and to amplify concern for others who do not have a platform. Please take care while watching.

We have dedicated years to working within the criminal legal system in support of people of all ages who encounter law enforcement. We have received grants focused on educating people with disabilities, including hiring Evolve Coaching to help produce the video What to Expect in a Traffic Stop. We have been invited by police departments, district attorney offices, jails, probation, parole, and other entities to provide training on supporting people with a medical diagnosis of autism.

Now, with Aliyah’s story, and the thousands of others who are caught up despite not being investigative targets, we face a conflict. How do we teach, train, support, or offer hope and information in the face of armed troops with marching orders, overwhelming power, and strong financial incentives to capture people regardless of their status? Aliyah did exactly what we teach people to do. She shouted, “I have a disability! I am autistic! I need accommodations!” and it was as if she were screaming into a void. Yes, she was later released, but the physical and emotional harm she and others experience daily cannot simply be erased. That is not how human bodies or brains work.

Through her sworn testimony, Aliyah Rahman has become the teacher, the volunteer advocate for others, and the embodiment of informed hope. We support her in spirit and hope her message helps stem the tide of violence in so many communities, and stops it before it spreads nationwide.

We are here.

If you need help, support, or connection, please reach out.

Autism Connection of PA

412-515-3938

Email: help@autismofpa.org

Language Matters: Why Disability Slurs Hurt—and What We Can Do About It

Until we recognize that autistic people and people with disabilities are valuable, capable human beings, we will continue to lose words that were originally meant simply to describe a demographic. Over time, everyday language gets twisted, misused, and weaponized—turning descriptive terms into insults. When that happens, the people connected to those words become targets too.

This cycle harms more than vocabulary. It harms people.

When Words Become Weapons

Many disability-related terms began as neutral descriptions. But because our society has long underestimated, excluded, or stigmatized people with disabilities, those words often slid into the realm of slurs. We see this most clearly with the R-word—once a clinical descriptor, now a widely recognized insult.

The problem isn’t the word itself.
The problem is how our culture has treated the people behind it.

If a group is not respected, their label becomes a punchline.
If a group is devalued, their identity becomes shorthand for “lesser than.”

Autistic people and families tell us that the impact is anything but harmless.

The Real Impact on Autistic People and Families

A parent recently shared with us:

“The slur-hurling is making us (autistic people and their families) feel like we’re ‘lesser than’. We’re not seen as deserving of services or help by the general public if we’re seen as a punchline. Or worse, we’re invisible because everyone is trying to make autism look like it’s less severe than what it is. Language does matter.”

This is the lived experience behind the jokes, memes, and “I didn’t mean it that way” excuses.

Slurs do more than sting. They influence whether someone is seen as deserving of support, empathy, or even basic dignity. They shape how teachers respond, how communities include, how neighbors interact, and how policymakers prioritize services.

When people become jokes, they also become invisible.

Minimizing Autism Doesn’t Help Anyone

There’s a growing cultural tendency to soften or minimize the challenges many autistic people face. While positive stories and strengths-based perspectives are important, they cannot erase the need for support, services, and understanding—especially for those with high support needs.

When autism is treated like a quirky personality trait rather than a legitimate disability, families may encounter disbelief, judgment, or outright dismissal.

And when slurs are used casually, it reinforces the idea that autism, intellectual disability, or developmental differences are inherently negative. Or worse, something to mock.

Respect Starts With Language

Changing the way we speak is not about being “overly sensitive” or enforcing “political correctness.” It is about recognizing the full humanity of autistic people and people with disabilities.

Words can:

reinforce stigma
block access to support
shape public attitudes
affect policy decisions
influence how people treat one another

Respectful language creates safer and more inclusive spaces. It signals that people with disabilities are real, valued members of our communities, not punchlines, burdens, or stereotypes.

What We Can Do

Everyone plays a role in reducing harm and building a more inclusive culture. Here’s where we can start:

1. Retire disability slurs—including the R-word—completely.
Even “as a joke,” they reinforce harmful beliefs.

2. Speak up when you hear others use them.
A simple “That word hurts people. Could we choose something else?” can make a difference.

3. Learn from disabled voices.
Autistic people and their families are telling us what they need. Listening is the first step.

4. Use language that reflects dignity.
People-first or identity-first language is always better than a slur.

5. Model respect in everyday conversation.
Kids, coworkers, and community members learn from what we say.

A Community Built on Respect

Autistic people and families deserve to be seen, heard, and valued. When we change our language, we help change our culture—and we make space for understanding instead of mockery, connection instead of stigma.

Language does matter.
And so do the people behind it.

If you or your family need support, Autism Connection of Pennsylvania is here to help.

Gia sitting on a chair instructing a class

IGIA Movement for Health Visits Autism Connection of PA

IGIA Movement for Health is well known in Pittsburgh, Pennsylvania for its innovative approach that incorporates various somatic practices like yoga, meditation, Hanna Somatics®, and dance to tap into the power of internal movement, stimulate new neural pathways, and improve the mind’s regulation of posture and emotions.

For the autism community, sensory overload and difficulty with interoception can interfere with the ability to recognize and manage emotions, so Autism Connection of PA was ecstatic to be invited to host IGIA Movement for Health for three pilot movement workshops. Three Rivers Community Care is also hosting a class on August 12th.

Care practitioner and IGIA Co-founder, Gia Cacalano, leads the Master Classes, taking cues from attendees to form her approach. IGIA movement practices can be done both seated and standing, they’re accessible, and no two classes are exactly alike. Co-founder and CEO, Harris Farris quietly participated in the first pilot class along with a small group. One autistic participant shares her experience with the class, and encourages others to attend.

Experiencing IGIA for Movement Master Class

I honestly didn’t know exactly what to expect, which can be a great source of anxiety. It was hot outside, and even though it was only 10:15 in the morning, I was already feeling overwhelmed with sensory overload. At least I think that’s what it was. Sometimes it can be difficult to identify what is going on with me, both physically and emotionally. I also realized that I had lost track of time and was running late.

The room was open and large with soft lighting. The instructor, Gia, was welcoming, the number of people in the class was small, and I had a great sense that I could just be myself. Gia explained that there is no wrong way to do the movements, and described how each movement affects the body.

Relaxes the nervous system
Spatial awareness in the environment
Internal spatial awareness – how I moved and how those movements related to how I was feeling
Observational rather than judgmental – no worries about being right or wrong, just noticing
Feeling less self-conscious – less resistance to trying something new
Sense of calm

Video: Harris Ferris demonstrates some simple movements

I recognized some of the movements and I thought, “Hey! These stem from stims!” Self stimulatory behaviors (or self-regulating behaviors) often serve a purpose, and I was perfectly happy to do some hand flapping that transformed into more delicate movements. It turns out that flapping and jumping ignites the lymphatic system, and can improve the immune system.

Visual stims were also weaved into the movements. We worked on eye tracking along with slow, intentional head movements that seemed to broaden my peripheral sight. I was able to take in the entire room visually rather than focusing on specific elements.

“Rocking is a controlled fall,” the instructor said. This statement stuck with me because I usually fight the urge to rock back and forth to calm myself. The slow, intentional rocking movements were among my favorites, and it was especially helpful to know that we were working on balance along with body awareness.

Time passed quickly in the movement class, and even though there was no rigid structure, the instructor came full circle and this helped me recognize that the session was coming to a close soon. We began and ended with foot movements, gradually rocking to a standing position.

I felt grounded and calm after the session, and I continued to notice when my muscles (especially in the shoulders) were getting tight throughout the rest of the day. I can see how practices from the movement class could help me regulate emotions after sensory overload, or when I struggle with interoception (during times when I feel disconnected from what I’m feeling, whether an emotion or hunger, fatigue or thirst).

This was the first of three sessions, and they are off to a great start.

Gia notes that “even simply being present in the room–just observing and breathing–changes the dynamic. Even if someone showed up and just focused on breathing, that would be a complete session.”

If you want to learn more about IGIA for Movement Master Class, please visit IGIA Movement for Health.

To participate in upcoming classes August 10th and 12th register here.

Background soapy bubbles with towels and soap in foreground

Autism Guide for Bathing and Showering

Helping an autistic adult who is struggling with bathing can be a gradual and patient process. Here are some strategies to provide support and encourage personal hygiene:

Understand their sensory needs: Sensory sensitivities can make the bathing experience uncomfortable or overwhelming. Take note of any specific sensory triggers and try to minimize them. For example, they might prefer a certain water temperature or specific bathing products.
Establish a consistent routine: Set up a daily or weekly bathing schedule to create predictability and structure. Routines help them know what to expect, and knowing what to expect can reduce anxiety.
Visual supports: Use visual schedules or step-by-step picture cards to help them through the bathing process. Visual aids can provide clear instructions and reduce anxiety about what comes next.
Gradual exposure: If the person is anxious about bathing, start with short sessions and gradually increase the duration over time. Offer positive reinforcement and praise for each successful attempt.
Accommodate preferences: If they dislike traditional bathing methods, explore alternatives like sponge baths, using a washcloth, or taking a shower with less water pressure.
Incorporate special interests: Integrate their special interests or favorite activities into the bathing routine to make it more enjoyable. For example, if they love a specific toy or sensory item, allow them to bring it into the bath.
Choice and control: Offer choices within the bathing process. Allow them to choose the soap or shampoo scent, the bathrobe they want to wear afterward, or the time of day they prefer to bathe.
Use social stories: Create social stories or videos that depict the importance of personal hygiene and the benefits of bathing. Social stories can be an effective way to explain new or challenging concepts in a relatable manner.
Create a sensory-friendly bathroom: Make the bathroom a comfortable and calming space. Use soft lighting, add sensory elements like scented candles or essential oils, and provide familiar and preferred towels and bath products.
Modeling and participation: Show the individual that bathing is a regular part of daily life by modeling the behavior. Consider taking baths or showers together initially to provide support and encouragement.
Offer rewards: Consider implementing a simple reward system for successful bathing attempts. This could be earning tokens for each bath, which can later be exchanged for preferred items or activities.
Seek professional support: If the challenges persist, consult with professionals, such as occupational therapists, who specialize in working with individuals with autism. They can provide personalized strategies and support.

More guidance and videos available on Autism Self Care.

Remember, each person is unique, and what works for one may not work for another. Be patient, understanding, and flexible in your approach, and celebrate any progress, no matter how small. Building a trusting and supportive relationship is key to helping the autistic adult feel more comfortable with the bathing process.

Identifying Autism in Adults

The autism spectrum is broad, varying features that are sometimes difficult to recognize on the surface. Some adults may have lived their lives without a full awareness that some of the barriers and struggles they have faced are a result of undiagnosed autism. Reports include those who have been stunned by the direct question, “When were you diagnosed with autism?” Other reports specify experiencing difficulty understanding social interactions, difficulty with tolerating textures, changes in routines, and being genuinely dumbfounded by other people’s seemingly insensitive perspectives and behavior. Those reporting range in ages from 20 to 64 years old.

At Autism Connection of PA, Chrisoula manages hundreds of calls, emails, and website contact entries each month. She offers suggestions to adults who want to identify the signs of adult autism, getting diagnosis, and finding support and resources.

-TLM

Identifying Signs of Autism in Adults

While autism is commonly associated with childhood, it is crucial to acknowledge that many people may remain undiagnosed until later in life. Some prevalent signs and characteristics that may indicate autism in adults include:

Social Communication Differences: Difficulty comprehending and utilizing nonverbal cues, challenges in sustaining conversations, and struggles with recognizing and expressing emotions
Sensory Sensitivities: Heightened sensitivity or aversion to specific sounds, sights, textures, tastes, or smells
Special Interests and Routines: Intense focus and extensive knowledge in particular areas of interest, accompanied by a preference for routines and consistency
Executive Functioning Challenges: Difficulties with organization, time management, planning, and flexible thinking
Social Interaction Difficulties: Feeling overwhelmed in social situations, experiencing difficulties in establishing and maintaining friendships, and struggling to grasp social nuances

Pursuing a Diagnosis

If you suspect that you may have autism or exhibit some of the aforementioned signs, it is important to seek a formal diagnosis. Here are the steps you can take:

Educate Yourself: Acquire knowledge about autism in adults and familiarize yourself with the diagnostic process. Learn about common traits and characteristics associated with autism. Weekly e-news covers a range of topics.
Consult Professionals: Reach out to healthcare providers, psychologists, or diagnosticians who specialize in assessing autism in adults. They can guide you through the evaluation process.
Diagnostic Assessment: The assessment typically involves interviews, questionnaires, and observations to evaluate your social, communication, and behavioral patterns. The goal is to gain a comprehensive understanding of your experiences and determine whether autism is an appropriate diagnosis.

Support and Resources

Following a diagnosis, people with autism can access various forms of support to enhance their well-being and quality of life. Here are some beneficial resources:

Therapy and Counseling: Engage in individual or group therapy sessions with professionals experienced in working with adults on the autism spectrum. Therapy can focus on developing social skills, regulating emotions, and addressing specific challenges.
Skill Development Programs: Seek out programs that offer training in areas such as executive functioning, communication, and social skills, tailored to the specific needs of adults with autism.
Support Groups and Communities: Connect with local or online support groups where you can meet others who share similar experiences. These groups provide opportunities to share insights, receive emotional support, and connect with others on a similar journey. We offer several support groups for you to join!

Recognizing signs of autism in adulthood, pursuing a diagnosis, and accessing support are crucial steps toward understanding oneself and navigating life with autism. By staying informed, seeking professional guidance, and utilizing appropriate resources, autistic people can embark on a path of self-acceptance, growth, and fulfillment. Remember, Autism Connection of Pennsylvania is here to support you every step of the way.

–Chrisoula Perdziola, Resource Specialist

help@autismofpa.org