Virtual support group for people diagnosed with autism later in life. This meeting is open to people who believe they are autistic and don’t know where to turn. Meets on the 1st and 3rd Wednesday of the month at 6:30pm.
Late Diagnosis of Autism Support Group
Virtual support group for people diagnosed with autism later in life. This meeting is open to people who believe they are autistic and don’t know where to turn. Meets on the 1st and 3rd Wednesday of the month at 6:30pm.
Late Diagnosis of Autism Support Group
Virtual support group for people diagnosed with autism later in life. This meeting is open to people who believe they are autistic and don’t know where to turn. Meets on the 1st and 3rd Wednesday of the month at 6:30pm.
Caring for Loved Ones with High Support Needs/Profound Autism
Building a Strong Support Team
Finding and working with the right support staff can make a big difference for families caring for loved ones with high support needs. In this support group, we’ll talk about how to build a reliable support team, including Direct Support Professionals (DSPs), home health aides, and school staff. We’ll share practical tips for finding staff, communicating your loved one’s needs, setting clear expectations, and building positive working relationships. Families will also have the chance to exchange ideas, challenges, and strategies that have helped them create supportive partnerships.
Why Aliyah Rahman’s Testimony Matters
For many years, we have used a decision-making funnel – developed through our board’s strategic planning – to guide what we post, write about, and include in our publications. An article must provide hope or useful information. We do not publicize trauma, pity, or inspiration porn. We are here to serve people and live our mission as a lifeline of support, information and advocacy. Scaring people, manipulating them with pity, or exploiting people with disabilities are simply the wrong tactics for us.
As a result, our total database now includes more than 21,000 contacts, with roughly 6,500 people following us on social media and about 12,000 receiving our weekly e-blast. It is okay to grow by serving people, and that appears to be exactly what has happened.
This week’s testimony by Aliyah Rahman is an example of extreme bravery, empathy, and resolve, and needs to be heard. Aliyah is an autistic woman with a traumatic brain injury who was assaulted by federal agents in Minneapolis. Her six-minute speech is extraordinarily powerful. While she speaks about being terrorized and harmed, her primary concern is for the many people she witnessed inside an inhumane detention center who do not have her platform. Aliyah demonstrates incredible courage that provides hope while also shattering the harmful stereotype that autistic people lack empathy. That is vital information for us all.
This video includes firsthand testimony from Aliyah Rahman, an autistic woman with a traumatic brain injury, describing harm she experienced in detention. Her words are difficult, but they are shared to provide truth, information, and hope, and to amplify concern for others who do not have a platform. Please take care while watching.
We have dedicated years to working within the criminal legal system in support of people of all ages who encounter law enforcement. We have received grants focused on educating people with disabilities, including hiring Evolve Coaching to help produce the video What to Expect in a Traffic Stop. We have been invited by police departments, district attorney offices, jails, probation, parole, and other entities to provide training on supporting people with a medical diagnosis of autism.
Now, with Aliyah’s story, and the thousands of others who are caught up despite not being investigative targets, we face a conflict. How do we teach, train, support, or offer hope and information in the face of armed troops with marching orders, overwhelming power, and strong financial incentives to capture people regardless of their status? Aliyah did exactly what we teach people to do. She shouted, “I have a disability! I am autistic! I need accommodations!” and it was as if she were screaming into a void. Yes, she was later released, but the physical and emotional harm she and others experience daily cannot simply be erased. That is not how human bodies or brains work.
Through her sworn testimony, Aliyah Rahman has become the teacher, the volunteer advocate for others, and the embodiment of informed hope. We support her in spirit and hope her message helps stem the tide of violence in so many communities, and stops it before it spreads nationwide.
We are here.
If you need help, support, or connection, please reach out.
Autism Connection of PA
412-515-3938
Email: help@autismofpa.org
Caring for Loved Ones with Complex Needs/Profound Autism
Caring for Loved Ones with Profound Autism/Complex Needs
Topic: Navigating the Medical System
This meeting is a safe space for parents and caregivers to share experiences, support each other and find resources.
Indoor Activities for Complex Needs
At Autism Connection of Pennsylvania, we believe meaningful activities don’t have to be loud, busy, or demanding. For many autistic people, especially those with higher support needs, the most powerful experiences are the ones that support regulation, safety, and choice.
Whether activities happen in a community space, at home, or online, what matters most is that people are free to engage in ways that feel right to them. Here are some activity ideas and guiding principles that help make that possible.
Sensory Activities: Supporting Calm and Regulation
Sensory activities can help the nervous system settle. These spaces and tools are designed to be soothing, predictable, and flexible.
Think:
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Quiet sensory rooms with soft or dim lighting
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Bubble tubes, fiber optic lights, or projected visuals
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Weighted blankets or lap pads for grounding
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Soft textures to explore, like fabric, gel pads, or water beads
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Preferred music or calming background sounds
There’s no “right” way to use sensory supports. Some people stay for a long time. Others take a quick break and move on, and that’s okay.
Creative Activities: Exploration Over Outcome
Creative activities aren’t about finishing a project or making something “look right.” They’re about exploring materials and enjoying the process.
Options might include:
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Painting with hands, sponges, or rollers
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Squeezing and shaping clay, dough, or putty
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Light tables or glow-based art activities
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Music play with drums, shakers, or chimes
Participation can look like watching, touching briefly, or repeating the same motion again and again. All of it counts.
Movement Activities: Helping the Body Feel Safe

Movement can be regulating, especially when it’s gentle and predictable.
Supportive movement activities include:
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Slow stretching or simple yoga poses
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Rocking chairs or supported indoor swings
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Walking paths with clear visual cues
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Soft obstacle courses made with mats and pillows
These activities aren’t about exercise or performance; they’re about comfort and body awareness.
Engagement Activities: Supporting Focus and Interest
Some activities help with attention and connection without requiring social interaction.
These might involve:
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Sorting or matching favorite items
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Cause-and-effect toys or switches
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Simple routines done the same way each time
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Choice boards using pictures or real objects
Familiarity and repetition can be reassuring, building trust and confidence.
Social Groups: Shared Space, Not Forced Conversation
Social groups don’t need talking to be meaningful. Often, simply being together in the same space is enough.
Small Group Options
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Sensory play groups
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Music and rhythm groups
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Quiet groups built around shared interests
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AAC-supported communication groups
Family-Supported Groups
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Parent–child sensory groups
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Sibling-friendly indoor play times
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Caregiver-supported adult groups
These groups work best when expectations are low and support is built in.
What Matters Most
Across all activities and groups, a few principles make the biggest difference:
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No pressure to interact
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Parallel play is welcome
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People can come and go as needed
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All forms of communication are respected
Belonging should never be tied to behavior, speech, or participation.
Indoor Events: Predictable and Calm
Indoor events are often more accessible when they follow a clear routine and keep sensory demands low.
Ongoing Events
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Sensory-friendly movie days
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Open sensory gym or playroom hours
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Quiet craft or activity times
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Weekly clubs with the same schedule each time
Special Events
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Sensory-friendly holiday gatherings
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Autism-friendly expos with quiet spaces
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Story times using objects, visuals, or AAC
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Music or performance events designed for people with profound autism
In-Home and Virtual Options: Flexibility Matters
Not everyone can attend in person—and they shouldn’t have to miss out.
Accessible alternatives include:
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Virtual sensory activities
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Recorded calming routines
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Online groups that use visuals or AAC
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Flexible options families can use at home
Choice and access should extend beyond physical spaces.
What Makes Activities Truly Accessible
Accessibility isn’t about one feature. It’s about the whole experience. The most supportive activities include:
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Visual schedules shared ahead of time
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Clear beginnings and endings
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Real choice, without pressure
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Trained, understanding staff
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Respect for non-speaking communication
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No requirement to “participate” in order to belong
When we design activities this way, we create spaces where autistic people can feel safe, regulated, and genuinely included, exactly as they are.
At Autism Connection of PA, that’s the kind of connection we’re working toward every day.
Call to Action for Providers
Are you offering autism-friendly activities or support for autistic people with complex needs?
Make sure families can find you by listing your program at autismofpa.org.
Families are actively searching for safe, accessible indoor activities for people with profound autism. Providers can help by ensuring their programs are listed in Pennsylvania’s statewide autism resource directory.
Email tammi@autismofpa.org to share your services and reach families who need them.
By listing your autism-friendly activities, social groups, or events, you help families find options that respect sensory needs, communication differences, and safety without forcing participation.
Join us in expanding access across Pennsylvania.
